Smorgass Bored Supporters - Please Read
- Thread starter Bigtruck
- Start date
don't make this harder than it is
Folks a sincere individual e-mail is of more value than dozens of cookie cutter e-mails cut and pasted and sent in. Below are the contacts and the clinical trial number. I would just identify myself as a friend of Doug's and state that he has been of great value in my life for many years or however long is true for you. Then say that you believe that Doug would be a candidate for participation in these trials and urge that he be considered. I recommend signing your full name but that is up to each individual.
It is more important to get the e-mails out than it is to get each one out in perfect form!
(edited to add, Doug's last name is Wiley I believe. That is what John Barton said in his case post)
Hu
(clinical trials information)
Please refer to this study by its ClinicalTrials.gov identifier: NCT00530894
Contacts:
Contact: Jodi Akin 949.250.2730 jodi_akin@edwards.com
(Clinical trial administrators where Doug would be going for the trial)
Contact: Alan Heldman, M.D. 305-243-5138 aheldman@med.miami.edu
Contact: Thomas Salerno, M.D. 305-585-5271 tsalerno@med.miami.edu
Folks a sincere individual e-mail is of more value than dozens of cookie cutter e-mails cut and pasted and sent in. Below are the contacts and the clinical trial number. I would just identify myself as a friend of Doug's and state that he has been of great value in my life for many years or however long is true for you. Then say that you believe that Doug would be a candidate for participation in these trials and urge that he be considered. I recommend signing your full name but that is up to each individual.
It is more important to get the e-mails out than it is to get each one out in perfect form!
(edited to add, Doug's last name is Wiley I believe. That is what John Barton said in his case post)
Hu
(clinical trials information)
Please refer to this study by its ClinicalTrials.gov identifier: NCT00530894
Contacts:
Contact: Jodi Akin 949.250.2730 jodi_akin@edwards.com
(Clinical trial administrators where Doug would be going for the trial)
Contact: Alan Heldman, M.D. 305-243-5138 aheldman@med.miami.edu
Contact: Thomas Salerno, M.D. 305-585-5271 tsalerno@med.miami.edu
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edited my post but for those that missed it
Doug's last name is Wiley I believe. That is what John Barton said in his case post.
Hu
Doug's last name is Wiley I believe. That is what John Barton said in his case post.
Hu
Ray,
Thank you for letting everyone know of Doug's situation. As many have asked, can we have guidance on the best verbage for the letter to the trial administrators to best lobby for Doug's case.
Please add me to your email list at: holly@playcsipool.com
God Bless,
Holly
Thank you for letting everyone know of Doug's situation. As many have asked, can we have guidance on the best verbage for the letter to the trial administrators to best lobby for Doug's case.
Please add me to your email list at: holly@playcsipool.com
God Bless,
Holly
Verbage
I think Hu, aka ShootingArts, had a good point. Just a sincere request, as a friend of Doug Wiley, that he be considered for the trial.
Doug lives in Tampa,Fl and is being treated by the VA there.
Thanks!!
Ray
(friend of Smorg) IMO
Holly said:
I think Hu, aka ShootingArts, had a good point. Just a sincere request, as a friend of Doug Wiley, that he be considered for the trial.
Doug lives in Tampa,Fl and is being treated by the VA there.
Thanks!!
Ray
(friend of Smorg) IMO
ShootingArts said:
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Thoughts and prayers are with you Smorgy.
My email just sent:
Re: ClinicalTrials.gov identifier: NCT00530894
January 29, 2008
Dear Ms. Edwards,
I write you regarding Mr. Doug Wiley. As a friend of Dougs for some time, I would like to sincerely ask that he be strongly considered for the trial on heart valve replacement (the Transfemoral procedure if I recall correctly).
Doug touches many, many lives and has so much life in him.
Doug is truly a living legend and I implore you to do whatever you can in your power to keep him that way. Thank you very much for your time.
Respectfully,
Matthew Todd Thompson
Greensboro, NC
Re: ClinicalTrials.gov identifier: NCT00530894
January 29, 2008
Dear Ms. Edwards,
I write you regarding Mr. Doug Wiley. As a friend of Dougs for some time, I would like to sincerely ask that he be strongly considered for the trial on heart valve replacement (the Transfemoral procedure if I recall correctly).
Doug touches many, many lives and has so much life in him.
Doug is truly a living legend and I implore you to do whatever you can in your power to keep him that way. Thank you very much for your time.
Respectfully,
Matthew Todd Thompson
Greensboro, NC
Sample
This isn't meant to represent the perfect thing to send, perfection isn't a requirement. Something short, sincere, and courteous is recommended. If you have the time, retyping each time so the wording isn't identical is better than cut and pasting the same message to all three people.
If you really find yourself unable to write something, feel free to use this and just plug in the proper names.
Thanks to everyone involved,
Hu
(edited to add, Todd was posting at the same time I was, his message is excellent!!)
Dear (Dr. and a full name , or Jodi's full name since the gender isn't absolutely certain.
This is another request that Doug Wiley be included as a participant in the clinical trial, NCT00530894.
Doug is a very special person who has enriched many lives for many years, including my life. At this point it seems that this trial is the only real hope for his survival. Please consider his inclusion as soon as possible.
Thank you for your consideration and assistance in this matter,
Hu (last name)
This isn't meant to represent the perfect thing to send, perfection isn't a requirement. Something short, sincere, and courteous is recommended. If you have the time, retyping each time so the wording isn't identical is better than cut and pasting the same message to all three people.
If you really find yourself unable to write something, feel free to use this and just plug in the proper names.
Thanks to everyone involved,
Hu
(edited to add, Todd was posting at the same time I was, his message is excellent!!)
Dear (Dr. and a full name , or Jodi's full name since the gender isn't absolutely certain.
This is another request that Doug Wiley be included as a participant in the clinical trial, NCT00530894.
Doug is a very special person who has enriched many lives for many years, including my life. At this point it seems that this trial is the only real hope for his survival. Please consider his inclusion as soon as possible.
Thank you for your consideration and assistance in this matter,
Hu (last name)
Excellent!
Very nice, one minor thing, I think Edwards LifeSciences is the name of the business or organization. Jodi is the contact person for the trials and the two doctors are the administrators for the trials in Miami where Doug would be.
As long is the e-mails reach where they need to go the message is loud and clear however.
Thanks to you and everyone else writing!
Hu
Very nice, one minor thing, I think Edwards LifeSciences is the name of the business or organization. Jodi is the contact person for the trials and the two doctors are the administrators for the trials in Miami where Doug would be.
As long is the e-mails reach where they need to go the message is loud and clear however.
Thanks to you and everyone else writing!
Hu
KoolKat9Lives said:
Thanks Everyone!
Reading that letter from KoolKat9Lives brought tears. How true it is!
I am sending you,KoolKat9Lives, some green as soon as I'm unlocked and able!
ShootingArts and JoeyA have been very active also in getting some help and encouragement to our buddy Smorg too!! Please keep them in your prayers and rep list too!!
Sincerely,
Ray
(Old Softy) IMO
Reading that letter from KoolKat9Lives brought tears. How true it is!
I am sending you,KoolKat9Lives, some green as soon as I'm unlocked and able!
ShootingArts and JoeyA have been very active also in getting some help and encouragement to our buddy Smorg too!! Please keep them in your prayers and rep list too!!
Sincerely,
Ray
(Old Softy) IMO
well if you are passing out atta-boys . . .
Nobody would even know about these clinical trials if Ray hadn't deliberately done some research seeking help for Doug. He has played a part in other things too.
Melinda(AKA Trigger) has to be remembered also. A sweetheart that has been working very hard to support and encourage Doug.
I am stopping here and with JoeyA that Ray has already mentioned but the list is far longer. All involved supporting Doug and giving him encouragement deserve praise. There are many truly outstanding people on this pool forum and when one of our best is in a bind we all come together to help.
Hu
Nobody would even know about these clinical trials if Ray hadn't deliberately done some research seeking help for Doug. He has played a part in other things too.
Melinda(AKA Trigger) has to be remembered also. A sweetheart that has been working very hard to support and encourage Doug.
I am stopping here and with JoeyA that Ray has already mentioned but the list is far longer. All involved supporting Doug and giving him encouragement deserve praise. There are many truly outstanding people on this pool forum and when one of our best is in a bind we all come together to help.
Hu
Bigtruck said:
Bigtruck said:Fellow AZers,
Doug has made a trip to the Dr. It was NOT good news. He has been told that he will not likely be able to have the much needed surgery for his heart valve.
Smorg has been THE most respected poster here for a very long time! He has been a real trooper while battling this condition, making us laugh often while hurting so much himself.
There is a clinical study that, if successful and approved by the FDA, will allow people in Doug's condition to get their valves replaced without having to overcome major obstacles like losing 1/3 of their total weight.
Doug seems to be an excellent candidate to be accepted into this trial. I am starting a campaign to get Doug accepted. If anyone would like to send an e-mail to the administrator of the trial, I am including the link below. It shows how the procedure works and has a link to the clinical study.
Click here to see how the procedure works! NOT GRAPHIC
I will be speaking to the clinical administrator today to see what we can do to get Doug considered!
****JoeyA is making sure Doug & Barbara get this info too!!
Thanks to everyone that can help!!
Sincerely,
Ray
I will be glad to send an e-mail but I don't know Doug's last name.
ShootingArts said:
Doug is one of the best and we all appreciate what he has done for us. He is worth everything we can do to help. It's that simple.
.
alstl said:
Wiley.
Email sent to Jodi. I hope it helps.
-Andrew
Bigtruck said:
So it is not the VA this time that is with holding treatment?