Smorgass Bored Supporters - Please Read
- Thread starter Bigtruck
- Start date
Florida Trial Location
I looked at this procedure a while back for my daughter but she wouldn't qualify due to a congenital bicuspid valve. In reading through the trial page there is a location in Florida that is recruiting for the study. If Doug's cardiologist contacts them directly it may be to good affect.
United States, Florida
University of Miami Recruiting
Miami, Florida, United States, 33136
Contact: Alan Heldman, M.D. 305-243-5138 aheldman@med.miami.edu
Contact: Thomas Salerno, M.D. 305-585-5271 tsalerno@med.miami.edu
Principal Investigator: Alan Heldman, MD
Principal Investigator: Thomas Salerno, MD
Prayers raised for you Doug.
I looked at this procedure a while back for my daughter but she wouldn't qualify due to a congenital bicuspid valve. In reading through the trial page there is a location in Florida that is recruiting for the study. If Doug's cardiologist contacts them directly it may be to good affect.
United States, Florida
University of Miami Recruiting
Miami, Florida, United States, 33136
Contact: Alan Heldman, M.D. 305-243-5138 aheldman@med.miami.edu
Contact: Thomas Salerno, M.D. 305-585-5271 tsalerno@med.miami.edu
Principal Investigator: Alan Heldman, MD
Principal Investigator: Thomas Salerno, MD
Prayers raised for you Doug.
ShootingArts said:
Thanks for the post Hu. I do know Ray played a big part in getting this information to help Doug.
In this big world of sometimes negative human responses, its very nice to know there are good eggs out there who are genuinely caring people who give so much. It gives me hope and a very good feeling inside.
Thanks Ray, Melinda, Hu, Joey A. and everyone who cares about Smorg.
A
I already received a reply from Jodi, she has suggested a re-direction. Does someone have insight into this Partner Trial Center? Hopefully this is not the runaround.
From: Jodi Akin (Jodi_Akin@Edwards.com)
Sent: Thu 1/29/09 2:45 PM
To: matt Thompson (mattthompson@hotmail.com)
Dear Matt,
Thank you for your email. I totally understand the plight of Mr. Wiley as we understand the difficulties of this patient population.
I would suggest you choose a PARTNER Trial center to have him evaluated by a participating site such as Emory University or Washington Hospital Center or even University of Miami.
Best of luck and let me know if I can be of further assistance.
Jodi
From: Jodi Akin (Jodi_Akin@Edwards.com)
Sent: Thu 1/29/09 2:45 PM
To: matt Thompson (mattthompson@hotmail.com)
Dear Matt,
Thank you for your email. I totally understand the plight of Mr. Wiley as we understand the difficulties of this patient population.
I would suggest you choose a PARTNER Trial center to have him evaluated by a participating site such as Emory University or Washington Hospital Center or even University of Miami.
Best of luck and let me know if I can be of further assistance.
Jodi
Here are the administrators
Here is the contact info for the trial administrators in Miami.
(Clinical trial administrators where Doug would be going for the trial)
Contact: Alan Heldman, M.D. 305-243-5138 aheldman@med.miami.edu
Contact: Thomas Salerno, M.D. 305-585-5271 tsalerno@med.miami.edu
Here is the contact info for the trial administrators in Miami.
(Clinical trial administrators where Doug would be going for the trial)
Contact: Alan Heldman, M.D. 305-243-5138 aheldman@med.miami.edu
Contact: Thomas Salerno, M.D. 305-585-5271 tsalerno@med.miami.edu
Smorg has kept me in stitches ever since he recommended what alcoholic beverage mixes best with one's beta blockers.
If anyone comes up with a final word on how to help him in a simple way, can they start a new thread so the answer doesn't get lost in some long convoluted thread?
If anyone comes up with a final word on how to help him in a simple way, can they start a new thread so the answer doesn't get lost in some long convoluted thread?
I just found this thread....Email sent.
Anything I can do to help our friend is well worth the time it takes. There are a lot of amazing people on this forum, that I've come to value very much. Doug is number 1 on this list...
I would like to encourage everyone who reads this thread (even the lurkers), to take 5 minutes and support one of AZ's greatest resources.
Michael
Anything I can do to help our friend is well worth the time it takes. There are a lot of amazing people on this forum, that I've come to value very much. Doug is number 1 on this list...
I would like to encourage everyone who reads this thread (even the lurkers), to take 5 minutes and support one of AZ's greatest resources.
Michael
Bigtruck said:
Thanks for keeping it focused, Ray. It makes it more effective if we act as an organized group. (and also Thanks to Hu for valuable input).
Now we keep our fingers crossed.
Yes, this is what we are seeking
This is what we are trying to get for Doug.
The official trial reference number is:
NCT00530894
The name is the partner trial and the full name the acronym comes from is behind it:
THE PARTNER TRIAL: Placement of AoRTic TraNscathetER Valve Trial
This is what we are trying to get for Doug.
The official trial reference number is:
NCT00530894
The name is the partner trial and the full name the acronym comes from is behind it:
THE PARTNER TRIAL: Placement of AoRTic TraNscathetER Valve Trial
demonrho said:
Working On One Now
I sent my e-mail off to both Drs. Haldman and Salerno - will keep you all posted if I receive any reply - Jackson
Subject: Clinical Trial for Doug Wiley
I am writing to you on behalf of Doug Wiley that he be strongly considered for the Partner Trial on heart valve replacment - Ref # NCT00530894.
You will be receiving numerous e-mails over the next few days from all over the country requesting this consideration for Doug. Because of his warm and generous personality and incomparable wit and wisdom, Doug has made many friends through a forum that he shares with thousands of people who have come to rely on him for that bit of sunshine in an otherwise all too gray world.
Know that whatever you do will be greatly appreciated and I thank you for your valuable time and consideration.
Subject: Clinical Trial for Doug Wiley
I am writing to you on behalf of Doug Wiley that he be strongly considered for the Partner Trial on heart valve replacment - Ref # NCT00530894.
You will be receiving numerous e-mails over the next few days from all over the country requesting this consideration for Doug. Because of his warm and generous personality and incomparable wit and wisdom, Doug has made many friends through a forum that he shares with thousands of people who have come to rely on him for that bit of sunshine in an otherwise all too gray world.
Know that whatever you do will be greatly appreciated and I thank you for your valuable time and consideration.
Outstanding!
That is a very nice piece of writing!
Hu
That is a very nice piece of writing!
Hu
jackson said:
Letters.........
Seriously though, Smorg has brought a smile to this place with his quick wit and humor, least we can do is help out a bit.:thumbup:
Darn those email machines, no job security there. Oh well, I will still support Doug.
You can count me in. Besides, working for the Post Office, this will be job security when all these letters start flowing.the420trooper said:
Seriously though, Smorg has brought a smile to this place with his quick wit and humor, least we can do is help out a bit.:thumbup:Darn those email machines, no job security there. Oh well, I will still support Doug.
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Email sent to clinical trial administrators. We love ya Smorgie 
ShootingArts said:
E-mail sent to Dr. Salerno.
